Rare Disease Day is undoubtedly one of the most salient events. It is a kind of international event that people observe on the very last day in the month of February. The foremost intention of this day is to raise among the public about rare diseases. In addition to this, people step forward on the rare Disease Day in order to improve the overall access to the treatment for the rare diseases. There are many non-profit associations that work hard in order to ensure that people having rare diseases get proper treatment. It was in 2008 when the European Organization for Rare Diseases setup the Rare Disease Day. They wanted to raise awareness for the overlooked and unknown illness.
Life is a sexually transmitted disease and the mortality rate is one hundred percent.R.D. Laing
Know More About The Rare Disease Day
Well, if you check the internet, you will get to know there are days for cancer and AIDS. Apart from these, there are many diseases that are being overlooked. But, they must be highlighted so that people suffering from those diseases can get proper treatment and resources. According to the European Organization for Rare Diseases, there is no special day that will represent the sufferer suffering from rare diseases. It was in 2009 when Rare Disease Day got global recognition.
It was on the 29th of February, 2008 when the European Organization for rare Diseases coordinated the first Rare Disease Day. They organized this in various European nations. If we specifically talk about Canada, it was the Canadian Organization for Rare Disorders that organized Rare Disease Day along with the help of the European Organization for Rare Disease. 29th of February is a rare day and this is why it is selected to observe this Day. People organize a fundraising campaign, took part in various press conferences, and walks in order to observe this day. In 2009, people in Colombia, Australia, Argentina, Panama, Russia, Serbia, the United States, and China observed the Rare Disease Day for the first time.
Canadian Organization For Rare Disorders
The Rare Disease Day and the Canadian Organization for Rare Disorders are inextricably associated with each other. The Canadian Organization for Rare Disorders is also known as the CORD. It is a kind of Canadian charity organization that is helping people suffering from rare diseases. The core objective of this organization is to improve the health policy and healthcare system for those people who are suffering from rare physical disorders.
Important Facts Associated With The Rare Disease Day
According to a survey, there are more than 7000 rare physical disorders that are affecting almost 30 million Americans. You might be shocked to know that half of them are children. The different disease requires different medication. People having rare disorders face complications while dealing with health cares. Moreover, there are many people who do not receive proper treatment and diagnosis.
